About Us

The Bleeding Disorders of Kentucky (BDoKY) Board is a diverse group of individuals invested in the improvement of health and wellness for individuals and families living with bleeding disorders.  This group brings together an array of legal, financial, clinical, and business experts in an effort to provide support and service to Kentucky residents.

The board directs committee activities and drives fund-raising efforts to support the mission.  If you might be interested in serving on the board or one of the committees, we would love to hear from you.  Fill out the “Contact Us” form and let us get you connected in this initiative to better serve those in our state.

BDoKY Executive Director

Alane Foley was only 6 years old when she was thrown into the world of bleeding disorders. Her new baby brother, Sam, was born with severe hemophilia A. She spent her adolescent life watching her mother care for Sam and learning the ins and outs of what it takes to raise a child with hemophilia. It did not take long for her to understand that individuals with bleeding disorders might be fragile but they sure are tough. Once an adult, equipped with the knowledge she gained through her life experience, this would prove to be very important, as she became a hemophilia parent as well.

Alane gave birth to Maclan in 2015, receiving his hemophilia diagnosis shortly after. Maclan fought his initial battles courageously and continues to stand brave in his fight. Alane and her husband, Harold, spend their time advocating for individuals with bleeding disorders through volunteering, parent support, community events and educational outreach. Alane worked in the commercial insurance industry for 20+ years and most recently served on the executive team for the Kentucky Public Pensions Authority. She currently serves as the President of the Board for Bleeding Disorders of Kentucky and takes great pride in her role as an advocate for patients and families living with bleeding disorders.

Please welcome Alane as the new Executive Director of the Bleeding Disorders of Kentucky.  We are fortunate to find someone with a vested interest in improving the lives of all individuals and families living with bleeding disorders.

 

Collaboration

BDoKY works collaboratively with both Hemophilia Treatment Centers (HTC) in an effort to provide quality education and support across the Commonwealth of KY.  We encourage all bleeding disorder patients to connect with an HTC for comprehensive care management and access to the newest treatment options.

Louisville Hemophilia Treatment Center

2401 Terra Crossing Blvd, Suite 202

Louisville, KY 40245

(502) 210-4301

BDoKY Board Members

  • Matthew Burnett
  • Evan Dupree
  • Amber Ferrell
  • Julia Kluesner
  • Mark Milburn
  • Diane Burnett
  • Stacey Powell

UK Hemophilia Treatment Center

800 Rose Street, Fourth Floor

Lexington, KY 40536

(859) 257-6033

Matthew is an attorney with Dinsmore & Shohl LLP in Louisville, Kentucky. Matthew’s practice includes estate, gift and income tax planning, asset protection planning, and estate (probate), trust, and guardianship administration.

Matthew Burnett

Evan Dupree received his bachelor’s degree in communications from the University of Alabama (ROLL TIDE) and attended Morehead State University for his MBA. He entered the hemophilia community the day he was born, being diagnosed with Severe Hemophilia A at three days old. With a mom who was an ER nurse for 27 years and later became a nurse practitioner, hemophilia has never kept him from doing anything and he has developed a passion for serving the bleeding disorder community. Evan is an avid hunter during the fall and loves to waterski and spend time on the lake during the summer. Evan has been in the energy industry for nearly 10 years and currently works for Trane Technologies serving commercial and industrial customers’ electricity and natural gas needs. He and his wife Jennifer have a 5-year-old daughter, 3-year-old son, and a very energetic wirehaired pointing griffon puppy.

Evan Dupree

Amber Ferrell is a graduate of Western Kentucky University and earned a Master of Science in Social Work at the University of Louisville.  She served as a Social Worker for 8 years at the local non-profit organization, Family and Children’s Place, working as a case manager assisting individuals experiencing homelessness and as a supervisor for the home visiting parenting support program, HANDS.  In 2019 she received the wonderful opportunity to serve the bleeding disorder community as the Social Worker for the University of Louisville Physicians Hemophilia Treatment Center.  When she’s not assisting patients, you can find Amber eating, camping, hiking, attending concerts, canoeing, or playing with her daughter and husband.  She is also a fur mom to two very special rescues, a dog named Mahgeeta and cat named Dudley. 

Amber Ferrell

Julia is a graduate of the University of Alabama and earned a Master of Social Work from the University of Kentucky.  She spent the first 20 years of her career as a social worker with Hospice of the Bluegrass, switching gears to work for the UK Hemophilia Treatment Center and DanceBlue Hematology-Oncology Clinic in 2013.  She has 3 daughters, including a set of twins, and a very special St. Bernard.  Julia enjoys kayaking, watching her daughters play softball and soccer for the University of Pikeville, and rooting for Bama Football. 

Julia Kluesner, CSW

Mark Milburn is Vice President, Health Systems, for Option Care Health, the largest national independent provider for infusion therapy.  Mark is a graduate of the University Of Kentucky College Of Pharmacy and received a Master’s Degree at Campbellsville University in Management and Leadership. With over 30 years’ involvement in health systems and infusion services, Mark has specific experiences with bleeding disorder programming, 340B Drug Discount Programming, Community Based infusion and Specialty Pharmacy. Mark and his wife Sharon love to travel with their favorite location being Walt Disney World.

Mark Milburn

Diane Burnett APRN recently retired as a pediatric nurse practitioner after working in Pediatric Hematology and Oncology (University of Louisville and Norton Cancer Institute locally) for the past 40 years. She graduated from Valparaiso University and University of Virginia for her nursing training.  She was one of the first nurse practitioners at Norton’s Children’s Hospital in 1983. Her passion was pediatric hematology, and taught many patients and families about their bleeding disorders, as well as many colleagues and nursing students during her tenure. She served on national hematology committees including National Hemophilia Nursing Committee, was content expert for ANCC Hemostasis Nursing Certification development, and lectured locally and nationally regarding pediatric hematology topics. She received numerous nursing and volunteer awards during her career.   She is married, has 2 grown children, a daughter in law, future son in law, and a new granddaughter- whom she is thrilled all live locally!  She is excited to be a board member for BDofKY and looks forward to seeing familiar friends and developing new ones!

 

Diane Burnett

Stacey Powell is a mom of three children, two with bleeding disorders and one without. Stacey and her family learned in 2012 that her middle child, a son, had a rare platelet storage pool bleeding disorder that presented as moderate/severe after he had been experiencing prolonged nosebleeds and easy bruising for many months. In 2013 her youngest child was also diagnosed with both vWD and the platelet storage pool disorder. Stacey then immersed herself into researching all that she could regarding the diagnoses. She joined her local Hemophilia Foundations and has attended many educational seminars. She works diligently to stay on top on medical advances regarding the bleeding disorder communities. Stacey has worked tirelessly to ensure that her children receive the accommodations in school so that their diagnoses does not negatively affect them in the educational settings. She and her son, Nolan, have spoken at HFA conferences and in parent panels regarding mental health and bleeding disorders.  Stacey has also spoken at Family Camps and facilitated Mom Talks for other chapters on behalf of the HFA.   

Stacey is currently a Records Clerk for Jefferson County Public Schools in a K-12 school, an advocate for animal rescue (both domesticated and wildlife) an active member of WAGS (Wonderful Animals Giving Support) therapy animals, with a certified therapy dog. 

Stacey holds degrees from the University of Louisville in Criminal Justice, Sullivan College in Paralegal Studies and resides in Louisville, Kentucky with her husband, three children, 4 rescued dogs and an adorably wacky cat.

 

Stacey Powell

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Bleeding Disorders of Kentucky

A Kentucky Foundation

1264 Denney Drive, Lawrenceburg, KY 40342
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